'I feel I’ve let him down': Father devastated after HSE group rejects funding for son's drug - National News
After publishing: 1 headline quietly rewritten, 1 URL changed2 changes
- irishexaminer.comseen 20 Aug, 07:41headline rewritten
'Money can't come into it': Friedrich's ataxia sufferers plead for approval of life-changing drug‘Money can’t come into it’: Patients plead for access to life-changing Friedrich’s ataxia drug - carlow-nationalist.ieseen 11 Sept, 09:20URL changed
What it is about
Who published it, and when
How it spread - 6 original reports
Wed, 12 August 2026
1 report- carlow-nationalist.ie08:06first to report
Around 200 people in Ireland are living with the rare neurological disease and have been campaigning for the drug to be made available by the HSE
Tue, 18 August 2026
1 report- irishexaminer.com06:01edited after publishing
previously
'Money can't come into it': Friedrich's ataxia sufferers plead for approval of life-changing drugFriedrich's ataxia patients wait anxiously to see if Skyclarys will be approved by the HSE’s senior management team on August 25
Sun, 23 August 2026
1 report- highlandradio.com14:13
In one final appeal to the HSE, patients with Friedreich’s ataxia took to the streets of Dublin city today to call for the funding of Skyclarys. The Health Service Executive is set to make a final decision on whether to fund the treatment in two days’ time. The some 200 people living with the neuromuscular […]
Mon, 24 August 2026
1 report- shannonside.ie12:01
The HSE's final decision on whether to fund treatment for Friedreich's Ataxia will be announced tomorrow.Hundreds of people with the condition will find out if...
Wed, 26 August 2026
1 report- newstalk.com14:22
Craig Coady’s oldest son, Rory, died with Friedreich's Ataxia last year and his second son, Paudie, has also been diagnosed with the disease.
Wed, 9 September 2026
1 report- redfm.ie09:47
Craig spoke with Neil off the back of HSE appoval of Skyclarys, after a long campaign from fami...